She is still a happy girl

Our girl hasn't lost her happy smile and sweet face through all this she is adapting well considering she has been lying on her back for 4 weeks not able to be picked up are anything. She is just such an angel God has been so good to her in his healing power thank each of you for the prayers again. Everyone here just adores her so much and couldn't ask for better team of doctors and nurses they all have been great.

Caitlin still here in Boston

we are still here in Boston in hospital hanging out until we know the next step. Caitlin's fever is gone but she is still on medicine by month for pain right now. She had a big day today her body armor was able to come half way off. She did so good with the sound of the saw so proud of her. We will be having test tomorrow at some point to check things out and go from there so keep praying please for a great outcome. She so far is healing really nicely and has been a trooper through it all. Hopefully these test will be good news and we can be discharged at least to go stay at children's house then at some point home. We will take it in steps. Caitlin will also come home with her sp tube that you see in the picture, it will not be removed until our next visit for the reason of making sure the bladder is doing what it needs to do first. I have been learning how to take care of her with the tube in being its gonna be a little different than when she was first born. I was worried she would pull it out being she is much older now.

Caitlin started running a high fever yesterday through the night and day. They did blood work and a urine sample. It showed an infection somewhere, the urine sample isn't back for a few days. She just had to get an IV put in to get meds but she is doing well other wise. keep the prayers coming.

Caitlin gets ready to move out of ICU

The girl is a trooper, she did great with the breathing tube taken out. She was moved to a regular room on Saturday the 7Th of Aug. She is taking the cast thing really well considering she can't move about. So far things are looking really good. She has great urine output- they have two stints in her abdominal and a sp tube also to help drain her urine. She was able to have one stint taken out on Wednesday she did great it wasn't to painful for her, then the next day the other one come out. She hasn't been on any pain medicine since her IV come out only Tylenol for discomfort. Now she only has the sp tube. Keep praying for her healing

YAY!! We finally made it to Boston for surgery

Caitlin was admitted August 1,2010 at Children's Hospital Boston. Caitlin went in for surgery early Monday morning on the second. She did very well during her surgery it was about 13 hrs and she is now in ICU for healing purposes this week so she can be watched more closely and she is pretty much sedated during this time to help her rest. Talked with the doctors this morning and said that they may take tube out for breathing on Thursday. They put her in a body cast instead of traction so we are waiting to see how things go so far the doctors and team have been wonderful. Please keep praying as she heals and recovers. Thank you all for your prayers and support.

We are nearing closer to surgery time

We are on our way to getting things ready for Caitlin's surgery. We are so thankful for all the prayers and support everyone has given us. Caitlin has grown strong and determined she is going to do things like her walking, the leg muscles were weak and she favored one more than the other. I just hate that she will have to learn how to do it all over again but I know she can. I will keep everyone posted as it nears closer.