News from Boston on test and procedures

In the last post in November of last year we took Caitlin to Boston to meet the exstrophy team of doctors and they did test and procedures to see more of how things are with Caitlin. Well it was good to hear that her bladder has grown some and can hold up to 22cc which is better than nothing. We were told that her kidneys look good and the doctors wanted to wait until 2010 to do surgery to give the bladder a chance to grow some to help her better. We are now set for surgery Aug 1 she will be admitted and surgery day is the second. We are so glad to finally have this done for her even though it was a long battle but its worth it for my child. I do have fears of what the outcome of the surgery will be for our daughter, and us as her parents have to go through. I know that the lord is with her and she is a strong little girl and we will take it one day at a time. Please do pray for us and I will keep you up to date.