was born with a rare birth condition called Classic bladder exstrophy that caused her bladder to twist inside out on the outside of the stomach, the pelvic bone is left open with this is other problems & concerns.
Monday, September 6, 2010
We are heading home
We seen the nurse Monday morning 8/30 and all was looking well. The plan was to return that Thursday but with the storm in route to Boston we asked if we could fly home early and the doctor was okay with it. We were so happy to be able to fly home that Tuesday and see our family. The flight went well and we made it home safely. We have been home a week and everything going well. We will return to Boston for follow up and tests. Caitlin is getting stronger each day and has been crawling, pulling up and trying to stand some she was able to take little baby steps all by herself but her legs are still weak.
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